What is public and patient involvement?
Public and patient involvement (PPI) is when research is undertaken with or by patients and the public, as opposed to research undertaken on, for, or about them. PPI contributors may also be referred to as experts by experience and can share valuable insights for research priorities.
What is public engagement?
Public engagement (PE) with research describes a range of methods of involving members of the public (not affiliated with an HE institute) in research. There are lots of different ways you can be involved in PE, but the overall goal will always be to create mutual benefit.
Who can join the panel?
Anyone that wishes to be involved development of research, research priorities and services over the age of 18 and residing in the United Kingdom.
What will happen if I decide to join the panel?
Your email address and all other data provided will be added to a secure mailing list. Email addresses will not be displayed to other panel members when adverts go out.
How do I join the panel?
You will need to complete an online questionnaire (using your phone, tablet, laptop or PC) and includes questions that will ask you about your demographics including age, gender, ethnicity, whether you have dependents and topic areas you would be interested in hearing about including Children, Young People and Families, Diagnostics and Therapeutics, Green Spaces, Mental Wellbeing, Cardiovascular Health and Care, Living with Cancer, Substance Use and Behavioural Addictions, Social Innovation, Workforce Development, Suicide and Self Harm, Violence prevention, Other public engagement opportunities, and Other public and patient involvement opportunities.
The questionnaire should take up to 10 minutes to complete.
If I join the panel, do I have to take part when I am contacted about a study?
No. You only respond if you are interested.
What kind of research might I be asked to be involved in?
It is difficult to predict what studies will be running in the future. As a PPIE contributor you are considered a valued member of the research team. This may involve you coming into the University to work with researcher, or to provide your opinions/experiences.
Examples of recent research projects that involved PPI contributions at LJMU
The IncludeAge Project explored middle to older aged people (40+) with Learning Disabilities and LGBT+ people’s experiences of inclusion and belonging in physical places and online spaces in England and Scotland. PPI contribution took place throughout the project, with the key insights being used to develop practical solutions and policy recommendations with people with Learning Disabilities and LGBT+ people to improve inclusion and belonging within local and online communities. Find out more about The IncludeAge Project.
The Multimodal Approach to Preventing Suicide in Schools (MAPSS) developing and trialling a suicide prevention programme in UK schools Adaptation of an Australian school suicide prevention programme for UK schools. Pupils from local schools were involved in focus groups to establish what they thought of the programme, whether they would like it to be delivered in schools, and what would need to change from the Australian version to make it suitable in a UK setting. Find out more about The Multimodal Approach to Preventing Suicide in Schools.
Examples of recent public engagement activities at LJMU
8 Hours There and Back follows the stories of Ruby, Jake and Grace as they navigate a world that they shouldn’t be in and a system that has forgotten about them. Told through a fusion of dance, projections and words ‘8 Hours There and Back’ examines how a system set up by adults is failing the children. This piece is inspired by the stories we have heard. Every story belongs to someone. Find out more about 8 Hours There and Back.
The War Widows Quilt Exhibition made by over ninety war widows and their families from armed forces shirts, the War Widows Quilt is a beautiful, moving piece of art that tells stories of love, loss, grief, and survival, and shines a much-needed light on the lives of war widows in the UK, past and present. Find out more about The War Widows Quilt Exhibition.
If I have to come to the University will my out-of-pocket expenses be covered?
Expenses and payment may be covered with the project you choose to be involved with. This will vary from study to study, and the researcher will be able to inform you about this.
How often might I expect to be contacted about studies?
Again, this is difficult to predict as it will depend on how often LJMU staff use the panel.
Will these studies be approved by a research ethics committee?
In some cases, PPIE contributors are consulted with at the very beginning of a project. This is to ensure from the offset, the right questions are being answered within the research topic. Depending on the project, PPIE may continue throughout the research at various stages.
Research involving participants external to the PPIE group may be ethically reviewed by an appropriate research ethics committee, usually Liverpool John Moores University Research Ethics Committee.
For how long will I remain a member of the panel?
Until you ask for your email address to be removed.
Who can I contact with any questions before I decide to join the panel?
Please get in touch with Claire Adshead should you have any queries.
What if I decide to leave the panel?
You are free to leave the panel at any time. Simply email Claire Adshead.
Who can I contact with questions about the panel?
Please email Claire Adshead.
What if my contact details change?
We only keep your email address, so you can tell us, give us the new address, and we can make the change.
How can I join the panel?
